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Our Values

What We Stand For — and What Holds Us Together

Family-Led, Family-Driven

We believe the people living it should lead it. Families, self-advocates, and caregivers bring insight, wisdom, and urgency that cannot be replaced by systems or professionals alone.

Lived Experience = Expertise

We do not need titles to have a voice. Our stories matter. Our struggles matter. And our solutions come from what we know firsthand, not from theory.

Collaboration Over Conflict

We are not here to fight. We are here to build. We welcome dialogue, partnerships, and progress, and we believe change happens faster when we lead with respect.

Storytelling With Purpose

We share personal stories to make policy personal. Not to shame, not to perform — but to help lawmakers and leaders understand what’s really at stake.

Transparency, Truth & Trust

We share personal stories to make policy personal. Not to shame or perform, but to speak the truth about what families are facing every day. Truth builds trust, and when decision-makers understand what is really at stake, change becomes possible.

Everyone Has Something to Offer

Some of us lead. Some listen. Some write, speak, or share quietly behind the scenes. However you show up, you make this stronger. Every role matters, and every voice adds to the power of our collective message. We may come from different places, but when we show up together, we speak with one voice.

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